# This Lupie Life

> Lupus The Invisible Illness


## Posts

- [The Weight of Five Words: "But You Don't Look Sick".](https://thislupielife.com/the-weight-of-five-words-but-you-dont-look-sick/): After 18 years with SLE, I’ve lost count of how many times I’ve heard this.
- [How I Manage Life With Lupus When My Body Has Other Plans](https://thislupielife.com/how-i-manage-life-with-lupus-when-my-body-has-other-plans/): I can spend the week looking forward to something, hoping my energy will hold up, only to wake up on the day and realise I can’t manage it.
- [What a Lupus Flare Feels Like for Me](https://thislupielife.com/lupus-flares-explained/): I can look forward to something all week, prepare for it and still wake up too unwell to go.
- [The Art of the Spoon Audit](https://thislupielife.com/the-art-of-the-spoon-audit/): Before I get out of bed, I’m already working out what I might manage. How tired do I feel? How sore are my joints? What have I planned, and what could wait?
- [When the Brain Fog Rolls In](https://thislupielife.com/when-the-brain-fog-rolls-in/): It starts with me forgetting a common word mid-sentence while whoever I’m with waits patiently.
- [The Flaw in the Scale](https://thislupielife.com/the-flaw-in-the-scale/): When I’m asked to rate my pain from zero to ten, I can usually give a number.
- [Grieving My Past Self: Life and Career After Lupus](https://thislupielife.com/grieving-past-self-chronic-illness/): Coming to terms with a lupus diagnosis means confronting the grief of losing who you used to be. Here is an honest reflection on rediscovering identity and self-worth.

## Pages

- [Contact](https://thislupielife.com/contact/)
- [Resources](https://thislupielife.com/resources/): A Simple Page to Record Symptoms, Energy, Mood.
- [Journal](https://thislupielife.com/journal/): This is where I share everyday life with lupus—the plans that change, the adjustments I make, and the quieter moments in between.
- [About](https://thislupielife.com/about/): I’m Trudy, and for over a decade, I kept my story tucked away. I was waiting for the right words, the perfect moment, or a healthier day to finally share it.
- [Home](https://thislupielife.com/): A personal blog about living with lupus,finding moments of joy, and learning to embrace a different life.


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